(tap tap) Is this thing on?

I think I’ve been cursed with “what do I write about?” syndrome. I’ve noticed it seems to hit most people who started a blog when they began researching cochlear implants. First you’ve got the research and testing to go through, then the surgery, recovery, activation, mappings, hearing new sounds…and then what?  After a while your hearing (or lack of it) is no longer the focus of your days.  What is there to say?!

When I started my blog, it was a way to express the many different ways I was affected by suddenly going deaf.  I felt like I was adrift, all alone, not a part of regular hearing society or the culturally Deaf community.  It’s not a common occurrence so I didn’t have people locally to reach out to who could really understand what it was like.  So I wrote, and it helped more than I ever imagined.

Now my life is just day to day stuff, no real drama.  But I’ve always enjoyed writing, and I had to make a choice: do I keep writing, just not always about hearing loss related topics?  Or do I just leave this site as-is, for people who are just starting their own research into cochlear implants?

It’s funny because I’ve read so many similar posts recently on other blogs I keep tabs on.  I know I’m not alone in this dilemma.  And anyway, I’ve decided to just keep on writing.  If I’ve got something to share that relates to my CIs or hearing loss, it will be here.  Otherwise I’ll just be writing about my day to day life.  I think this may make my site drop off of the aggregator sites that are deafness-related but I hope you’ll add this site to your feed reader or bookmark me and check back, to keep in touch.

After all that explanation, the ironic thing is that I do have something hearing-loss related to share!

I’m sure we’ve all heard plenty about the flu this year, especially H1N1. My daughter is 15 and in high school, and they’ve been sending home all kinds of information about the flu. So far they haven’t closed her school for flu-related illness outbreaks, but according to her there have been lots of students and staff coming down with it.  A 14 year old girl in a neighboring town died recently after coming down with H1N1 so the schools around here are being really cautious.  And of course, Paige came down with the flu at the end of October.  It was really inevitable, considering all her friends were sick around the same time.

One thing my kids inherited from me is the fact that we always run high fevers; none of this 101 F stuff…we run them around 103 or 104.  This is exactly what happened to Paige; her temperature hovered around 103.5 and she was just miserable. But for the first time ever, she was afraid of it affecting her hearing. She was laying on the couch, nearly in tears from discomfort and just distraught in general.  I heard her say, “What if I lose my hearing because of my fever?” It just broke my heart.

My kids have never seemed worried about losing their hearing; if they have, they’ve never expressed it to me. We really don’t know what caused my hearing loss, which as far as I know has occurred in three separate incidents (as a toddler, in 1993 and in 2008).  It was always assumed my original hearing loss was caused by a high fever I had when I had roseola as a toddler.  It was high enough to land me in the hospital, on a bed of ice.  My mom still talks about how she would sneak me off of the ice (when the nurses weren’t around) and hold me to her body to warm me up, because I was turning purple from the cold.  I think my temperature was around 106.  Paige remembered this, and for the first time ever, I saw the fear on her face as she considered the possibility of losing her hearing.

I reassured her, of course – we don’t even know if the fever caused my initial hearing loss, and the fever I had was much higher than the one she currently had.  Still though, I had a fleeting glimpse of what it would be like, as a parent, to find out your child has hearing loss.  Even just knowing she was scared of the possibility made me want to protect her.

She came through just fine, by the way – she ran a high fever for two days, had another day of very low-grade fever, and then it was over.  Amazing how kids bounce back!


About wendiwendy

I'm a real-life bionic woman.

Posted on November 5, 2009, in Family and tagged . Bookmark the permalink. 4 Comments.

  1. I can totally relate Wendi. I actually started a second blog to post my poetry, pictures and thoughts. I named it “pickwords” and chose wordpress for this one. I need to understand blogger and wordpress so I an steer my clients that want to blog to what is right for them.

    I’ve had brief experiences with the hearing loss fear for children and grandchildren since doctors’ suspect it is genetic. I’m hoping it was a rogue gene and we won’t see it again.


  2. Yeah– I know what what you mean. I don’t know what to write about half the time. But I write just cause I enjoy writing and nothing more. It’s not a money-making venture or anything like that. DeafRead will still publish your stuff on the extra page, no matter what you write. Your blog may actually even be more interesting to some.

    As for your hearing and your kids. . . I have known that fear. When my son was very small a teacher wanted his hearing tested because she thought he couldn’t hear in the classroom. Turned out he could hear just fine though. He had ADD.

    Doctors have never really pinpointed why I lost my hearing. I had that Connexin 26 test to rule out genetics, but since they haven’t identified every possible gene abnormality out there, it’s not 100% accurate. I can safely say no known gene abnormalities were identified, and it’s safe to assume that my deafness was caused by something else. Doctors think either it was the measles or the steptomycin prescribed.


  3. Actually heard the “tap tap” coming through your writing, Wendi. So many blogs, too little time, yours is amongst the better, hearing related or not!


  4. I think a lot of blogs morph from their original intent. I started mine as a twins blog!


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